Did you know that your Christmas shopping can contribute to scientific research for the care and life quality improvement of people with merosin deficiency congenital muscular dystrophy? It sounds complicated, but it is very easy: These are the businesses that are collaborating with ImpulsaT and...
After a week of campaign with activities of scientific dissemination and inclusive leisure, today 15th, World Day of Neuromuscular Diseases, the 24 families in Spain affected by congenital muscular dystrophy due to merosin deficiency we launched the video: "Your impulse makes us fly." We have...
On Wednesday, November 11th at 6 p.m, there will be a webinar on congenital muscular dystrophy due to merosin deficiency and the main lines of research in Spain. The webinar will be given by the researchers: Laura Coch. PhD in Biomedicine from the University of...
On Saturday, November 14th at 11 a.m. we will meet on the Jitsi platform to listen to the "Children's stories to fly" from the Anna Roca Theater Company. The solidarity performance will be given by Anna Roca, who has been telling exciting, tender and funny...
On the occasion of the 15N, World Day of Neuromuscular Diseases, families remember that research in rare diseases is negligible. Only collective involvement can help improve the lives of those affected. Most boys and girls with merosin-deficiency congenital muscular dystrophy cannot walk or eat alone,...
The solidarity around the families who live with an illness fills us with energy to move forward. We would like to thank everyone for their involvement in making more than twenty solidarity actions possible throughout 2019. SOLIDARITY DAY AT THE ROCALBA SCHOOL OF SANT FELIU DE...
On October 22nd and 23th Penélope Romero, one of the researchers from the group led by Jordi Barquinero from Vall d'Hebron Research Institute (VHIR), presented the advances in the project "Development of a preclinical novel gene therapy approach for congenital muscular dystrophy 1A" at the...
From July 25th to 28th was held in Chicago the "2019 Congenital Muscle Disease Scientific & Family Conference" organized by Cure CMD. In these conference brought together researchers from around the world specialists in congenital muscular dystrophies. ImpulsaT facilitated that the researcher Marc Güell could...
Next March 28th and 29th, the ImpulsaT - Cure for merosin deficient children association will attend the International Conference on LAMA2- DMC, which will be hold in Arlington, Virginia, USA. It will include the papers of Dr Cohn and Dr Bonneman, two well known scientists...