IMPULSAT is the official spanish non-profit association representing people having Congenital Merosin-deficient Muscular Dystrophy (LAMA2-CMD1A). We are a non-profit association of relatives, doctors, scientists and friends of people affected with this disease.
We collaborate with the scientific community, both at national and international level, with the aim of promoting and financing new research lines which contribute to the development of treatments and a cure for this disease. We also collaborate with federations who promote care work in order to improve life conditions of children and adults affected with LAMA2-CMD1A.
PROMOTING AND CONTRIBUTING
TO MEDICAL RESEARCH PROJECTS
Promoting and contributing to medical research projects to develop treatments and to improve life quality of patients.
CREATING A SPANISH NATIONAL
Creating a Spanish national patient registry, using an internationally compatible registry model.
Developing a network between people affected with LAMA2-CMD1A and both national and international organisms, in order to accelerate the research and the development of a treatment, as well as to improve the knowledge and the awareness of the disease.