Who we are

Association and objectives

The association

IMPULSAT is the official spanish non-profit association representing people having Congenital Merosin-deficient Muscular Dystrophy (LAMA2-CMD1A). We are a non-profit association of relatives, doctors, scientists and friends of people affected with this disease.

We collaborate with the scientific community, both at national and international level, with the aim of promoting and financing new research lines which contribute to the development of treatments and a cure for this disease. We also collaborate with federations who promote care work in order to improve life conditions of children and adults affected with LAMA2-CMD1A.

Goals

PROMOTING AND CONTRIBUTING
TO MEDICAL RESEARCH PROJECTS

 

Promoting and contributing to medical research projects to develop treatments and to improve life quality of patients.

CREATING A SPANISH NATIONAL
PATIENT REGISTRY

 

Creating a Spanish national patient registry, using an internationally compatible registry model.

DEVELOPING
A NETWORK

 

Developing a network between people affected with LAMA2-CMD1A and both national and international organisms, in order to accelerate the research and the development of a treatment, as well as to improve the knowledge and the awareness of the disease.