Cure for merosin deficient children
This May has been the first of the Solidarity Network of Physiotherapists, which we started with the idea of creating a shared solidarity that raises awareness about minority diseases and muscular dystrophy in the world of physiotherapy. Public resources are not dedicated to rare diseases but there is a lot of energy we are receiving […]
Organizations, companies, bet on a Corporate Social Responsibility (CSR) that gives impulse to research in rare diseases. The 2020 has been a tough year for people living with a disease, but we do not give up! From the ImpulsaT Association we have chose to continue raising awareness and involving society in the research of congenital […]
The Center Origen Salut de Sant Cugat, La Palestra de Llagostera, Noemí Perelló Fisioteràpia Cardiorespiratòria and Redi Espai Salut, from Terrassa, are the first centers to join the Solidarity Network of Physiotherapists in May The Solidarity Network of Physiotherapists, the initiative that invites all pre-professional physiotherapists in Spain to promote, with the help of ImpulsaT, […]
The ImpulsaT Association, which brings together the 26 families in Spain affected by congenital muscular dystrophy due to merosin deficiency, is launching the solidarity action Physiotherapists Network of Solidarity. Children affected by this minority disease need a lot of physiotherapy support to reduce pain and enhance mobility, so we have carried out a citizen involvement […]
On February 28th, World Rare Diseases Day, 5 members from the ImpulsaT Association presented a self-published report explaining what their day-to-day life was like with Congenital Muscular Dystrophy due to Merosine Deficiency. In order to sensitize people about the reality of their disease, and the obstacles that society imposes on their personal development, Ana, Carmen, […]
On Saturday 30th of January, from 12.30am to 1.30pm we will cook a steak of Iberian strogonoff with pilaf rice and individual carrot cakes for dessert! We will do this with Sesé San Martín, founding partner and director of the TELVA Cooking School, member of the Royal Academy of Gastronomy in Spain and grandmother of […]
On December 21st at the Pia de Balaguer school was made a solidarity snack in favor of ImpulsaT. Parents, teachers and children organized this fest to share a moment before the Christmas holidays. The money they raised was donated to the Association to invest in the projects that we from the entity finance for research […]
Maier King Lara is a graphic designer and computer scientist, but she is also many other things. She is involved in the ImpulsaT Association, which works for the cure of people with congenital muscular dystrophy due to merosin deficiency. She herself has lived with the disease since she was little and collaborates with the entity […]
Did you know that your Christmas shopping can contribute to scientific research for the care and life quality improvement of people with merosin deficiency congenital muscular dystrophy? It sounds complicated, but it is very easy: These are the businesses that are collaborating with ImpulsaT and that will give part of their benefits to our projects: […]