Documentary by ImpulsaT members: What it’s like to live with a merosin deficiency
On February 28th, World Rare Diseases Day, 5 members from the ImpulsaT Association presented a self-published report explaining what their day-to-day life was like with Congenital Muscular Dystrophy due to Merosine Deficiency.
In order to sensitize people about the reality of their disease, and the obstacles that society imposes on their personal development, Ana, Carmen, Montse, Manuel and Alba answer several questions on the subject, focused on their personal experience. The editing and postproduction of the documentary was done by Alba Izquierdo, member of the association.
Here you have the trailer of the report and below we attach the link to see the entire report.
Here you can see the entire report directly. Remember to activate the subtitles to be able to follow it better. We hope you learn, leave your comment and share it.