From the ImpulsaT Association we help you to involve your people in collecting resources for the investigation of congenital muscular dystrophy due to merosin deficiency. Tell us your idea and we will help you make it come true. We share some activities already been made: 👉 Sale of bracelets. These children from Cornellà de Llobregat, […]

The ImpulsaT Association, which brings together the 26 families in Spain affected by congenital muscular dystrophy due to merosin deficiency, is launching the solidarity action Physiotherapists Network of Solidarity. Children affected by this minority disease need a lot of physiotherapy support to reduce pain and enhance mobility, so we have carried out a citizen involvement […]

On February 28th, World Rare Diseases Day, 5 members from the ImpulsaT Association presented a self-published report explaining what their day-to-day life was like with Congenital Muscular Dystrophy due to Merosine Deficiency. In order to sensitize people about the reality of their disease, and the obstacles that society imposes on their personal development, Ana, Carmen, […]