02/03/2021
Documentary by ImpulsaT members: What it’s like to live with a merosin deficiency
On February 28th, World Rare Diseases Day, 5 members from the ImpulsaT Association presented a self-published report explaining what their day-to-day life was like with Congenital Muscular Dystrophy due to Merosine Deficiency. In order to sensitize people about the reality of their disease, and the...