Did you know that your Christmas shopping can contribute to scientific research for the care and life quality improvement of people with merosin deficiency congenital muscular dystrophy? It sounds complicated, but it is very easy: These are the businesses that are collaborating with ImpulsaT and that will give part of their benefits to our projects: […]

After a week of campaign with activities of scientific dissemination and inclusive leisure, today 15th, World Day of Neuromuscular Diseases, the 24 families in Spain affected by congenital muscular dystrophy due to merosin deficiency we launched the video: “Your impulse makes us fly.” We have made the video with the dreams of boys and girls […]

On Wednesday, November 11th at 6 p.m, there will be a webinar on congenital muscular dystrophy due to merosin deficiency and the main lines of research in Spain. The webinar will be given by the researchers: Laura Coch. PhD in Biomedicine from the University of Barcelona and Bachelor of Biotechnology from the Autonomous University of […]

On Saturday, November 14th at 11 a.m. we will meet on the Jitsi platform to listen to the “Children’s stories to fly” from the Anna Roca Theater Company. The solidarity performance will be given by Anna Roca, who has been telling exciting, tender and funny stories since 1996. Admission to the show is free. You […]

On the occasion of the 15N, World Day of Neuromuscular Diseases, families remember that research in rare diseases is negligible. Only collective involvement can help improve the lives of those affected. Most boys and girls with merosin-deficiency congenital muscular dystrophy cannot walk or eat alone, although their intellectual development is not affected. The ImpulsaT association, […]