Who we are

Association and objectives

The association

ImpulsaT (move on)- Cure for merosin deficient children is the official spanish  association which represents the persons having the Congenital Merosin Deficient Muscular Dystrophy (LAMA2-CMD).

We are a non-profit association made by relatives, doctors, scientists and friends of people with this disease. We want to engage our energy and our effort to make possible that children and adults with LAMA2-CMD can live better.
With the goal to promote and finance research lines which can contribute to the development of treatments for the cure of this disease, we are creating synergies with the scientific community at national level as well as at international level and working and cooperating directly with the the american association Cure CMD,  worldwide benchmark organisation in the research for the treatment of congenital muscular dystrophies.

Association STATUTES (in spanish)

Objectives

We are a team of people who work with the purpose of finding a treatment or the cure for the Congenital Merosin Deficient Muscular Dystrophy (LAMA2-CMD) with all our energy, with transparency, cooperative work, optimism and determination, in order to give a better quality of life to the affected ones.

Obtaining financial resources

Working to get economic resources that may allow us to finance and launch research projects for the treatment and cure of the disease.

Promoting synergies

Promoting synergies among the people affected by this disease in Spain and the national and international organizations, so as to speed up its research and treatment.

Create the affected national patients registry

Creating the national database of people with the Congenital Muscular Dystrophy by Merosin Deficiency / LAMA2-CMD)